A Journey of Discovery in Hepatitis B and C

About My Journey

My name is Raquel and over the next 12 months I will be travelling around the world on behalf of the World Hepatitis Alliance. As part of my tour, I will be meeting with patients, medical associations, patient groups and politicians to gain a better understanding of how countries are tackling hepatitis B and C and to share best practice from other countries...

Who am I? Well, 3½ years ago I knocked on a charity's door in London to ask if I could interview some people for my masters thesis on hepatitis. Since then I have turned a personal interest into my daily working life and have never left the hepatitis field. I have always been passionate about hepatitis – I lost someone I loved dearly to hepatitis C when I was 15 and have seen many other people needlessly suffer from hepatitis C and B through my charity work in this field.

Knowing that treatments for hepatitis C can be very effective if patients are diagnosed early and that there is a vaccine to prevent hepatitis B motivates me to continue raising awareness of these diseases which collectively affect 500 million people in the world and take 1.5 million lives a year.

I hope my journey helps bring change for the hepatitis community and that people benefit from it as a consequence. Welcome to my blog: keep up to date with my journey here!

Where will I be visiting?

On behalf of the World Hepatitis Alliance, I will be visiting the following countries to learn about how governments, patient advocacy groups and the medical community are tackling chronic hepatitis B and C:

  • Argentina
  • Australia
  • Bangladesh
  • Brazil
  • China (including Hong Kong and Taiwan)
  • Ghana
  • Poland
  • New Zealand
  • Scotland
  • USA
  • Vietnam

Blogging Together

Blogging together is an opportunity for bloggers, vloggers, and photo-bloggers to support the 'Am I Number 12?' campaign. Add a badge and show your support for the 500 million people living with hepatitis B and C today.

Alternatively if you want to make your own badge, send it to us and we will include it in our gallery of badges: worldhepday@fleishman.com

Join me and support worldhepatitisday.org

March 2009 Archives

Just Do It

No, this is not a new Nike advert, it's about vaccination programmes!

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Hepatitis in Taiwan - the good and the bad

After being seen by six, yes, six check-in assistants at Beijing's International Airport (which made me think that not many Brazilians go to Taiwan - I mean, people were very intrigued with my passport - or I was somehow looking very suspicious that day?!), I made it through the boarding gates and arrived in wonderful Taipei.

 

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Goodbye Beijing and thank you

As you can see from my previous posts on China my visit here has been eye opening - I hope reading the blog has been as educational to you as it has been to me...

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Counting in China

I just came back from a very interesting meeting with the China Centre for Disease Control (CDC) http://www.chinacdc.net.cn/n272562/, where I was shown their National Infectious Diseases reporting database.

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Let's get creative

We have just one month to go until the closing date for our creative competition! You can find full entry details, judging criteria, competition rules and nomination forms on our website www.aminumber12.org/Competition.aspx.

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Getting to grips with Traditional Chinese Medicine

Ok, this is a very, very interesting subject people!

Warning: If you are Chinese you might find the content of this post a bit dull and rather obvious so please excuse my western interest!

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Hello China!

I arrived in Beijing on their first day of winter (it's snowing!) - after that never ending plane ascent to the skies, we finally stabilised and landed OK!

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Enlightening Times

Now, in my last post I was talking about the current hepatitis B and hepatitis C situation in Hong Kong and I must say my visit was really enlightening; it was a completely different experience to the one in Brazil and Argentina, as well as Europe where the biggest problem is often hepatitis C. It was interesting (and at the same time worrying) to witness first-hand the scale of the hepatitis B problem in Hong Kong.

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Hepatitis in Hong Kong

Well - after spending a few short nights at home (enough time to do the washing) - I was back on another 11 hour flight, this time heading for Hong Kong. Hong Kong was chosen to host this year's Asia Pacific Association for the Study of the Liver (APASL) congress. The place was buzzing with doctors, professors, clinicians, students and various other representatives of patient groups and the pharmaceutical industry so I had a great opportunity to learn about the hepatitis B and hepatitis C landscape here.

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A big thank you

I just would like to say thank you to the patient groups and doctors I met during my trip to Brazil and Argentina; for the time they spent with me and for sharing their knowledge and experiences with me.

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WHO said what?

I arrived back in London happy that my luggage arrived safely (yay!), but sad because I was already homesick, cold as I went from 38C to 1C in less than 13 hours, tired because I didn't get any sleep on the flight and excited for being back in my second home.

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Football and hepatitis: what a match!

Now, I promised I wasn't going to mention football earlier - and I didn't - but this is post seven and that's totally different so let me tell you something really interesting I learned in my visit to Brazil and Argentina...

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Room for improvement in hepatitis C treatment

I really don't want to seem picky. I mean, I truly love Argentina (it's a wonderful, beautiful country with wonderful, beautiful - actually, very beautiful - people) but there are more problems I need to report here regarding hepatitis C treatment.

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