Come Join Us...
05/19/09 by: Raquel Jose
Fellow Twitter users today can't have missed the buzz around World Hepatitis Day.
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Bill Clinton | Boris Johnson | Twitter | World Hepatitis Day
A Journey of Discovery in Hepatitis B and C
About My Journey
My name is Raquel and over the next 12 months I will be travelling around the world on behalf of the World Hepatitis Alliance. As part of my tour, I will be meeting with patients, medical associations, patient groups and politicians to gain a better understanding of how countries are tackling hepatitis B and C and to share best practice from other countries...
Who am I? Well, 3½ years ago I knocked on a charity's door in London to ask if I could interview some people for my masters thesis on hepatitis. Since then I have turned a personal interest into my daily working life and have never left the hepatitis field. I have always been passionate about hepatitis – I lost someone I loved dearly to hepatitis C when I was 15 and have seen many other people needlessly suffer from hepatitis C and B through my charity work in this field.
Knowing that treatments for hepatitis C can be very effective if patients are diagnosed early and that there is a vaccine to prevent hepatitis B motivates me to continue raising awareness of these diseases which collectively affect 500 million people in the world and take 1.5 million lives a year.
I hope my journey helps bring change for the hepatitis community and that people benefit from it as a consequence. Welcome to my blog: keep up to date with my journey here!
Where will I be visiting?
On behalf of the World Hepatitis Alliance, I will be visiting the following countries to learn about how governments, patient advocacy groups and the medical community are tackling chronic hepatitis B and C:
- Argentina
- Australia
- Bangladesh
- Brazil
- China (including Hong Kong and Taiwan)
- Ghana
- Poland
- New Zealand
- Scotland
- USA
- Vietnam
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Blogging Together
Blogging together is an opportunity for bloggers, vloggers, and photo-bloggers to support the 'Am I Number 12?' campaign. Add a badge and show your support for the 500 million people living with hepatitis B and C today.
Alternatively if you want to make your own badge, send it to us and we will include it in our gallery of badges: worldhepday@fleishman.com
May 2009 Archives
A message arrives from former President Clinton...
05/19/09 by: Raquel Jose
This just in...the World Hepatitis Alliance has just received a letter from none other than former President Bill Clinton, yes, Bill Clinton!! This is so exciting!
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Bill Clinton | Clinton Foundation | World Hepatitis Alliance
Competition
05/19/09 by: Raquel Jose
Last night I was looking at all the entries we received for the World Hepatitis Day creative competition and I have to say that there are some really great submissions!
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Prevent. Protect. Immunize.
05/18/09 by: Raquel Jose
Hi guys, here is another quick post to share a really cute video with you; it was made by the World Health Organisation Europe to celebrate the European Immunisation Week (EIW), which happened at the end of last month (20-26 April).
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GOOD LUCK FOR WORLD HEPATITIS DAY 2009
05/18/09 by: Raquel Jose
To everyone holding events tomorrow, GOOD LUCK!!
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Calling all fellow Twitter Users - Show your support and join me for World Hepatitis Day
05/15/09 by: Raquel Jose
The World Hepatitis Alliance is calling on Twits all around the world to show their support for World Hepatitis Day on May 19 (next Tues) by changing their Twitter profile icon to this.
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'Am I Number 12?' on Bulgarian Big Brother!
05/14/09 by: Raquel Jose
The Bulgarians managed to do something incredible this year - INCREDIBLE!
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Talking to European Patient Groups at EASL 2009
05/13/09 by: Raquel Jose
The leading European association in the field of liver research, the European Association for the Study of the Liver (EASL), holds an annual meeting which brings together clinicians, scientists, patient groups and patients. The meeting attracts more than 7,000 participants every year, with me being one of them!
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Good bye Bonny Scotland
05/11/09 by: Raquel Jose
So, as you could see, despite spending only a short time in Glasgow, my trip was very enlightening and I should thank the following people for taking their time to see me:
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This is how you do it
05/ 8/09 by: Raquel Jose
I'm now on my way back to London - and have just managed to get rid of a stranger who sat next to me and proceeded to ask all sorts of questions including if I could teach him Portuguese?! No comment. Anyway, it's pretty quiet now so I can tell you all about the Scottish Action Plan for hepatitis C and how much Scotland and the Scottish Government are putting everyone else to shame - don't worry, I won't get too factual here or write an essay about it (even though I could easily do it; I still have four hours till I get to London!)
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diagnosis | government action plan | hepatitis c | prevention | Scotland
Action (Plan) in Scotland
05/ 7/09 by: Raquel Jose
Arriving safely in Scotland I began the first of many meetings with C Level (a hepatitis C charity which operates in Glasgow). Apparently, a recent study showed that 45% of current drug users are still sharing needles, despite all the information out there about the risks associated - that is really worrying.
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Scotland here I come...
05/ 7/09 by: Raquel Jose
I'm now on my way to Glasgow. This time, just before the trip, I 'conveniently' took my passport to the Brazilian Consulate for renewal so guess what, I had no other choice but to take a train to Scotland, which means that at this very moment I am not anxious, I am not scared, I am not worried about my luggage being mistakenly sent to another part of the planet - it's just brilliant!
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