A Journey of Discovery in Hepatitis B and C

About My Journey

My name is Raquel and over the next 12 months I will be travelling around the world on behalf of the World Hepatitis Alliance. As part of my tour, I will be meeting with patients, medical associations, patient groups and politicians to gain a better understanding of how countries are tackling hepatitis B and C and to share best practice from other countries...

Who am I? Well, 3½ years ago I knocked on a charity's door in London to ask if I could interview some people for my masters thesis on hepatitis. Since then I have turned a personal interest into my daily working life and have never left the hepatitis field. I have always been passionate about hepatitis – I lost someone I loved dearly to hepatitis C when I was 15 and have seen many other people needlessly suffer from hepatitis C and B through my charity work in this field.

Knowing that treatments for hepatitis C can be very effective if patients are diagnosed early and that there is a vaccine to prevent hepatitis B motivates me to continue raising awareness of these diseases which collectively affect 500 million people in the world and take 1.5 million lives a year.

I hope my journey helps bring change for the hepatitis community and that people benefit from it as a consequence. Welcome to my blog: keep up to date with my journey here!

Where will I be visiting?

On behalf of the World Hepatitis Alliance, I will be visiting the following countries to learn about how governments, patient advocacy groups and the medical community are tackling chronic hepatitis B and C:

  • Argentina
  • Australia
  • Bangladesh
  • Brazil
  • China (including Hong Kong and Taiwan)
  • Ghana
  • Poland
  • New Zealand
  • Scotland
  • USA
  • Vietnam

Blogging Together

Blogging together is an opportunity for bloggers, vloggers, and photo-bloggers to support the 'Am I Number 12?' campaign. Add a badge and show your support for the 500 million people living with hepatitis B and C today.

Alternatively if you want to make your own badge, send it to us and we will include it in our gallery of badges: worldhepday@fleishman.com

Join me and support worldhepatitisday.org

Ghana successfully calls upon their government to raise awareness for World Hepatitis Day

As you may know from reading my blog Ghana is on the list of countries the World Hepatitis Alliance will be visiting later this year as part of the 'Am I Number 12? - Around the World Tour'

Two of the most active patient groups in Ghana; The HEPI Pearl Foundation and the Theobald Hepatitis B Foundation, successfully coordinated many awareness raising activities across Ghana for World Hepatitis Day.

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Mawuse Appea, who was crowned Miss Ghana in 2008(!), called on the Ghanaian government to include vaccination against hepatitis B in the National Health Insurance Scheme to ensure Ghanaians get tested and vaccinated. Ms Appea also secured a statement signed by Mr Larry Hagan, Communication Director of the Miss Ghana competition, stating that Ghanaians must get tested to see if they have hepatitis B and even to get vaccinated immediately. A great effort there!

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Now, I've been following the progress of these two groups in Ghana since they began and it's so great to see the amazing work that has been done to help patients in Ghana. I'm definitely looking forward to meeting both Mawuse and Theobald to learn more about their projects and the important work they do. 

 

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